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Living with cancer

10 February 2013, 14:48

The Forgotten cancer!

No one knows the stigma I feel for having a glioma at age 30.  Aged 27 as a student I had no medical was stuck in  a private healthcare system and money was fading quicker than life, because aged 27 as a student I "chose" to fall ill before a career and medical aid.

Double the stigma (medical refugee)

Moved broad to socialist system like a refugee because money more valuable than life. Falling between the  "unpatriotic" and "sponge of  social security" catagories for which the  relarted

synonyms read "llife/money "death unemployed"

No triple it!

You "chose" the wrong cancer. No media or celebrity attention. Your cancer is lost unacceptably mongst the awarenesss months of October and November and yet:

More people sucomb to it under 40 than any other cancer!

More kids succomb to it than any other cancer!

More woman under 45 than cervical cancer!

More Men tan any other cancer!

More woman under 35 than breast cancer! More men under 45 than prostate cancer !

No screening!

Causes unknown! 

Cannot usually be completely cut out!

Degrades life after surgery/treatment unlike other cancers with following complications: amnesia, epilepsy, vision impairment affects motor skills!

Rugby Related?

Jan Ellis former springbok passed away from unspecified cancer. I am trying to determine if there is a link between rugby head injury and brain tumors I am 30 and living with a glioma. Reuben Kruger passed away in 2011 and SA(WP)  prop  Morne Van Der Merwe ,  Australian,Julian Huxley (Aus), etc. With occurrence rates of 1 in 100 000 surely this needs to be looked at? A lot of the people in a private group elsewhere on FB have stated they have has some head trauma. I guess as long as this form of cancer remains last in place in media spotlight, , funding etc. Who knows? 

Quadruple the stigma

Perhaps just my age, but if I beat this I have no career, or stability,  family to look forward to for picking a forgotten cancer, at an age where one builds up a future. This is quickly negated however hthrough the even more horrific realization that 40 years have not seen brain or prostate cancer stats improve and will likely continue:

My ame is Yucca. In 3 years I have had as many tumors, more surgeries, more nerve wrecking MRI's, conflicting diagnosis, had symptoms ignored before this saga by several experts who stand little chance to diagnose as many never even meet someone like me in a whole career combined with  unknown causes and no screening.

Be Warned

1 in 200 00 may not sound likely you're going to get a brain tumor, but statistically you're already a 1 in 7000 000 00 Look at some stats I posted above Should anyone you know get brain cancer, they likely will fall into those stats at the current rate of things

The final Stigma

Having the word "cancer" thrown t me as an umbrella term leading to the  "you'll be fine. I know others who had cancer and made it" paradigm. I'm sorry. My cancer can't be cut out, poses a unique challenge of getting medicine to the brain due to the blood-brain barrier and too many other factors. 

Because I care

A pinterest board that you may find useful if you or anyone you know ever need it.  I'll keep it updated as long as I'm here:

God bless.

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