'I wasn't ready to die': 24-year-old shares his battle of overcoming cancer three times

By admin
11 December 2016

The Pietermaritzburg man was just 19 when he received his first diagnosis.

One thing’s for sure – nobody else has a tattoo like it.

That’s because Stefan Rust’s inking is of an x-ray of his right knee after he had surgery for bone cancer at the age of 19.

The 24-year-old grew so tired of relating the story of his first cancer diagnosis that he designed the artwork and had it tattoed onto his right bicep.

PHOTO: JACKIE CLAUSEN PHOTO: Jackie Clausen

Now instead of having to draw a diagram every time someone asks about his five-year battle with cancer, he can simply flex his right arm and show them.

Stef is currently undergoing radiation therapy for his fourth bout of cancer. After being diagnosed with stage 3 bone cancer in 2011, he battled lung cancer in 2014 and again in 2015, and in February this year another tumour was discovered in his right lung.

When we chat with Stef a day after a radiation session, he’s visibly exhausted. The treatment has taken its toll, but he perks up when he tell us that the end is almost in sight.

“I’m leaving for the UK in December for a holiday with my girlfriend,” he beams. “I can’t wait to start a new life next year, and to put all the cancer drama behind me.”

PHOTO: Facebook PHOTO: Facebook

It’s been an arduous five years. Since 2011, Stef’s life has been a constant barrage of cancer diagnoses, painful surgeries and gruelling chemotherapy. But instead of letting it get him down, the Pietermaritzburg filmmaker shares his journey with pride.

It was during his first bout of chemotherapy that Stef rediscovered his passion for art. “After my knee surgery, the final round of chemo was very aggressive, and I had to stay in ICU for a while,” he says. “I became very depressed during that period, so I turned to art as an outlet for that pain and negativity.”

Turning his experiences into art has proved to be cathartic for the young filmmaker. After his third cancer diagnosis in 2015 he decided to make a film called Portrait of a Lifehouse.

“It was a symbolic film about my personal journey with cancer, and it was also the first time I found myself able to really talk about it,” he says.

PHOTO: Supplied PHOTO: Supplied

Stef drew inspiration for the film from a dream he had. “The first night after my initial diagnosis, I had a nightmare. A giant wasp kept stinging my knee, and then the tumour grew out of it. In the film I portrayed that imagery, but I used butterflies – something beautiful – to battle the eggs that kept growing out of the knee. It’s not your stereotypical cancer film,” he says with a laugh.

“I felt as if a huge weight had finally been lifted off my shoulders. The film is a reminder of my survival.”

One of the positive outcomes of his cancer journey is how unifying the disease has been. “My brothers and I have grown so much closer. Everyone knows they will die someday, but living with the knowledge that you may die at any moment has just made me appreciate my life – and everything in it – so much more.”

When he was told he had stage 3 bone cancer five years ago, Stef’s immediate concern was for his family. “It was the first time I saw my dad cry. And my triplet brothers, who are five years younger than me, I could just see how terrified they were too. It was really, really hard.”

Then 19, he thought the sharp pain in his right knee were a result of his daily 20-minute walk to and from the University of KwaZulu-Natal, where he was studying visual art. But a biopsy revealed a massive tumour in his right knee.

“I remember hearing the doctor tell my mom to prepare for a long battle ahead. I didn’t know what to really think or feel,” he says.

PHOTO: Supplied PHOTO: Supplied

“When you’re 19, you think you’re invincible. You think nothing can get you down. It was scary for me to face my mortality at such a young age.”

Stef first had chemotherapy to reduce the size of the tumour and in February 2012 underwent a full knee replacement.

“The tumour as well as my knee, half my femur and half my tibia were removed. It was mentally difficult to prepare for the possibility that I may come out of surgery without my leg, but the doctors worked wonders, and the operation was a success,” he says. “My dad was there when I woke up and says the first thing I did was reach for my knee. When I felt it, I immediately smiled and went back to sleep.”

The chemo he had afterwards to reduce the risk of the cancer spreading elsewhere was particularly gruelling.

“I lost my hair within two weeks. I was constantly vomiting. It was extremely intense, and there were days when I couldn’t get out of bed because I felt so sick. But I persevered, because I wasn’t ready to die.”

PHOTO: Supplied PHOTO: Supplied

Stef was given the all-clear after the chemo and returned to his studies and life with renewed optimism. But in 2014 his world came crashing down again. A routine scan revealed he had a massive tumour in his right lung. “I can’t explain it, but the news was more sickening than the first time I was diagnosed with cancer,” he recalls.

Two days later Stef had surgery to remove the tumour. “The pain I felt afterwards was like nothing I’d ever experienced before,” he says. Despite the pain, Stef made the bold move to relocate to Durban a few weeks after the operation to start a new life there.

“I enrolled at film school and was determined to follow my dream of becoming a filmmaker,” he says. The rest of 2014 was “a whirlwind.”

“I was in remission, everything was going well. I made new friends, met my girlfriend, and for the first time in three years things seemed to be going according to plan.”

Everything seemed to be falling into place for Stef – but more bad news was yet to come in 2015. “I went for a routine scan and it picked up another tumour in my left lung,” he says. Stef felt as if his life was falling apart all over again. “It was like going back to square one, and I kept wondering if this was ever going to end. Thankfully, it was a smaller tumour than the previous two, and once it was removed I went back to school.”

Telling his girlfriend, Tayla-Rae Coetzer (22), that his cancer had returned – not once, but three times – has been one of the most difficult things he’s had to do, Stef says.

“It was extremely difficult on her because her mom had cancer when she was younger, and now she had to see me go through it too. I remember when I received the first lung cancer diagnosis in 2014 and had to let her know. . . I couldn’t do it. My mom had to tell her because I was crying so much,” he recalls.

PHOTO: Supplied PHOTO: Supplied

But Tayla-Rae took the news in her stride and has been by Stef’s side through it all – even the not-so-pretty post-chemo vomit bits, he says. A film graduate herself, she’s also helped Stef to document his most recent diagnosis and treatment for his popular YouTube channel in form of monthly video diaries.

Stef’s short films have been popular with both local and international viewers, many of them fellow cancer patients who’ve drawn inspiration from his experiences.

Next year the couple will be relocating to Cape Town, where they hope to begin a new – and cancer-free – life together.

PHOTO: Facebook PHOTO: Facebook

“Film saved me from cancer, and now I live for film,” Stef says. “My greatest hope is that my films will help others to notice the beautiful things in the world, be it a sunset or a sunrise. I want to inspire people to live their lives to the fullest.

“That’s certainly what I’m going to be doing. I want to show people that I won’t let this horrible thing that happened in my life starve me of my happiness.”

- Latashia Naidoo

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