'Miracle baby' born without a nose dies at age two

By Kim Abrahams
06 June 2017

Eli Thompson was called a ‘miracle baby’ after he was born with congenital arhinia.

A little boy who was born without a nose has died at the tender age of two.

Eli Thompson was called a “miracle baby” after he was born with congenital arhinia, a condition where the sufferer is born without nasal passages or sinus cavities.

Eli, from Mobile in Alabama, USA, was born prematurely on 4 March 2015.

He was given a tracheotomy, which would enable him to breathe during feeding, at just five days old.

Read more: Invincible eight-year-old can’t feel pain due to rare condition

Sadly, he passed away this past Saturday.

“We lost our little buddy last night. I’ll never be able to make sense of why this happened, and this will hurt deeply for a long time. But I’m so blessed to have had this beautiful boy in my life!” Jeremy Finch, Eli’s father, wrote on Facebook.

“He finished his race a lot earlier than we would have liked, but it was God’s time to bring him back home. I’ll forever look forward to seeing him at the gates of Heaven waiting on me to give me another one of his famous fist bumps! I love you, little man. Rest in peace with my Father.”

Although he couldn’t speak, Eli was a high-spirited little champ and communicated with them through sign language, his parents say.

Eli with his mother, Anamarie Finch. Eli with his mother, Anamarie Finch.

There are only around 30 to 40 cases like his in the world and when Eli was seven months old, he met one other congenital arhinia sufferer.

Tessa Evans and her family, from Ireland, were overwhelmed at meeting the Finches. Tessa was two and a half years old at the time.

“Tessa was totally taken with Eli and hugged him and stroked his head. Watching Eli gaze up at her was too precious for words,” Grainne Evans, Tessa’s mother, said afterwards.

“He touched a lot of people’s lives,” Jeremy added. “A lot of people cared about him.”

Sources: metro.co.uk, people.com, fox5sandiego.com 

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