Mom pleads for help for her sick daughter: 'The doctors don't have anymore answers'

By admin
24 April 2016

Little Chadé van Niekerk is six years old but weighs barely as much as a bag of potatoes.

Chadé has to wear a colostomy bag which is very uncomfortable. Chadé has to wear a colostomy bag which is very uncomfortable. PHOTO: Facebook

About a year ago the redhead girl from Birchleigh, in Kempton Park, was diagnosed with hollow visceral myopathy and since then she’s spent so much time in hospital she had to cut short her Grade 1 year.

Visceral myopathy is a rare condition affecting the the working of the alimentary canal and muscle tissue. In those suffering from the condition food can’t move through the alimentary canal and be absorbed by the body.

Read more: Groundbreaking operation for premature baby with hole in her breastbone

Chadé’s mom, Charlotte, is a single parent and the two of them, together with Chadé’s younger brother, live with the children’s grandparents.

“They battle financially,” says Karien Theunissen, a friend of the family. Charlotte is the only breadwinner but she recently lost her job, supposedly because she’d spent so much time with Chadé at the hospital. Their electricity was recently cut off and the family is struggling to keep their heads above water.

Chadé's mom recently lost her job, supposedly because she’d spent so much time with Chadé at the hospital. PHOTO: Facebook Chadé's mom recently lost her job, supposedly because she’d spent so much time with Chadé at the hospital. PHOTO: Facebook

In November last year Chadé underwent an operation to attach her appendix to her navel. This followed an operation to remove a third of her colon. Since then she has had to be fed through a tube in her stomach, says Karien.

Karien has started a Facebook group on behalf of Charlotte to keep Chadé’s relatives and classmates up to date on her progress. She frequently shares photos of the little girl.

Read more: Meet Baby Zee, the 11-month-old with a heart that ‘leaks blood’

After the operation on Chadé’s colon she lost weight rapidly and today weighs slightly more 11 kg.

She has to wear a colostomy bag which is very uncomfortable. “We’re not allowed to force her to eat and drink. She’s receiving vitamins and may take in only certain foods,” Charlotte says on Facebook.

The little girl had to cut short her first year of school. PHOTO: Facebook The little girl had to cut short her first year of school. PHOTO: Facebook

About two weeks ago Charlotte said Chadé was in a lot of pain again. “This morning she’s crying and we had to remove the bag because it was leaking on the intestinal side. Operations don’t help much any more. Thanks for everyone’s prayers,” she wrote.

This week, the family suffered another setback. Chadé’s granny let it be known that she was back in the hospital for more tests.

Afterwards Charlotte announced that the doctors don’t know what to do many more. “Chadé has been referred to the Red Cross Children’s Hospital in Cape Town. The doctors here have no more answers but at the Red Cross there’s a paediatrics professor who knows everything about the condition and will be able to help.”

Those who would like to help can contact Karien on 084-913-0449, or contact Chadé’s school, Laerskool Birchleigh, which is trying to help the family. The number is 011-972-2127/8. 

Find Love!

Men
Women