Making life easier for MND sufferers

2018-10-30 06:01
PHOTO: phindile shoziThe founder of MND Leaf For Life, Sue Touzel (centre), with her husband Charles Touzel and daughter Sandi Schoeman.

PHOTO: phindile shoziThe founder of MND Leaf For Life, Sue Touzel (centre), with her husband Charles Touzel and daughter Sandi Schoeman.

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BEING affected by motor neuron disease (MND) encouraged Sue Touzel to start a campaign to raise money to help other people who have been diagnosed with the same disease as her.

Touzel’s daughter, Sandi Schoeman, said that her mother was diagnosed with MND five years ago and knowing what the disease can do to a person, she decided to start a campaign called the MND Leaf For Life.

MND Leaf for Life is a campaign with its aim to provide whatever it can to help those with motor neuron disease who are unable to afford or provide for themselves.

Schoeman said that MND is a very rare disease, affecting about two in every 100 000 people, in which the motor neurons die. “Motor neurons are nerves that transmit signals to your muscles and when the neurons die, the muscles atrophy, resulting in the muscles becoming paralysed,” she said.

She said her mother started the campaign to make the lives of those affected by the disease a little bit comfortable by providing them with wheelchairs and ventilators to help them breath because there’s no cure for it.

“There is no cure for it and there is only one drug available in South Africa called ritulek, which can extend a life by a few months.

However, there are several other drugs and aids that can provide symptomatic relief and make a motor neuron disease patient’s life much more comfortable, thereby greatly improving quality of life,” said Schoeman.

Schoeman said some people affected by the disease can’t afford the medication or aids, which is why her mother started this campaign.

She encouraged people to support the campaign because every little donation they make will make a huge difference to people’s lives.

“MND is very rare disease and its hectic. By supporting this campaign you will be helping making the lives of people affected by it a little bit better for them,” she said.

For more information on MDN, or to support the fundraising drive contact, Schoeman at 083 777 9811/22.

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