Living in hope of a better life

2018-11-07 06:02
Kiasha with her grandmother and primary caregiver Jeanie John. PHOTO: byrone athman

Kiasha with her grandmother and primary caregiver Jeanie John. PHOTO: byrone athman

Multimedia   ·   User Galleries   ·   News in Pictures Send us your pictures  ·  Send us your stories

DIAGNOSED at birth with spastic cerebral palsy, Kiasha John (5) has lived most of her life extremely physically disabled and, for the most part of it, unable to talk. But now there is surgery which could change all of that.

Kiasha’s grandmother and primary caregiver, Jeanie John, told the Maritzburg Fever that her granddaughter has had a hard life with the family having gone to numerous doctors over the years in order to try and help Kiasha live a more normal life.

“From the time she was born we have been fighting her battle.

“We have been back and forth to doctors who have not been encouraging of her situation, with one doctor actually saying that she was going to be blind forever,” said John.

John said that it was her neighbour who brought some hope for her granddaughter’s condition. After attending a talk on cerebral palsy at Cordwalles, Kiasha’s neighbour was given valuable information about cerebral palsy which he brought back to the family.

“After that we found out about stem cell treatment, which is only offered in India, and that has since given us some hope for a better future for Kiasha,” said a hopeful John.

The treatment protocol involves a seven day hospital stay during which time Kiasha will be extensively evaluated clinically.

This will then be followed by a bone marrow aspiration from which subsequently the mononuclear cells are isolated.

These are hematopoietic mononuclear cells which are injected inthrathecally through a lumbar puncture and CSF catheter. This is followed by four days of intensive physiotherapy, occupational therapy, speech therapy, counselling and other medical treatment.

For the trip to India and the procedure, Kiasha will need approximately R160 000, of which R80 000 has been sponsored by a donor who wished to remain anonymous.

John said that Kiasha’s family are hopeful that this procedure will enable her to have a better life in the future and that she will eventually be able to function on her own in society.

“She is a lovely child and we are hoping that the public will support us in any way possible as we try to raise funds for her to get help,” pleaded John, who added that Kiasha was unable to speak and use her limbs until recently, which made it very difficult for her to function on a day-to-day basis.

John hopes that they will have enough funds by next year June or July in order to go to India for the procedure and her family will be engaging in various fundraisers for Kiasha. Should you wish to donate to Kiasha and her family please contact Jeanie John at 033 387 6305.

Kiasha’s family are hopeful that this procedure will enable her to have a better life in the future and that she will eventually be able to function on her own in society

Join the conversation!

24.com encourages commentary submitted via MyNews24. Contributions of 200 words or more will be considered for publication.

We reserve editorial discretion to decide what will be published.
Read our comments policy for guidelines on contributions.
NEXT ON NEWS24X

Inside News24

 
/News
Traffic Alerts

Jobs in Cape Town [change area]

Jobs in Western Cape region

Cluster Financial Manager

Cape Town
Network Finance
R950 000.00 - R1 000 000.00 Per Year

IT Manager (contract)

Cape Town CBD
Communicate Cape Town IT
R330 000.00 - R458 000.00 Per Year

Reporting Accountant

Cape Town
Network Finance Professional / Prudential
R310 000.00 - R360 000.00 Per Year

Property [change area]

There are new stories on the homepage. Click here to see them.
 
English
Afrikaans
isiZulu

Hello 

Create Profile

Creating your profile will enable you to submit photos and stories to get published on News24.


Please provide a username for your profile page:

This username must be unique, cannot be edited and will be used in the URL to your profile page across the entire 24.com network.

Settings

Location Settings

News24 allows you to edit the display of certain components based on a location. If you wish to personalise the page based on your preferences, please select a location for each component and click "Submit" in order for the changes to take affect.




Facebook Sign-In

Hi News addict,

Join the News24 Community to be involved in breaking the news.

Log in with Facebook to comment and personalise news, weather and listings.