‘All he wants to do is stand and walk, but he can’t’

2016-03-09 06:00
Smiling despite the circumstances is Little Liam at his Kabega Park home.                PHOTO: SUPPLIED

Smiling despite the circumstances is Little Liam at his Kabega Park home. PHOTO: SUPPLIED

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SOME much-needed funds for a tendon transplant to correct her son’s club feet, saw a Port Elizabeth mother hosting a live auction on Facebook among other fundraisers to provide the necessary finances.

After meeting with specialists last month, Celeste Jansen, Liam’s mother, was given the go ahead for the transplant, but due to funds not being available, the operation cannot be done. The cost of the operation can only be determined once dates have been set for the operation.

Little Liam, aged just 24 months, has already undergone five surgeries, and each time the brave toddler from Kabega Park fought his way back to health.

Liam Blake Jansen was born with Amniotic Band Syndrome, a congenital disorder caused by entrapment of fetal parts, like amniotic bands in the womb, restricting blood flow and affecting the baby’s development. In this case, Liam was born with amniotic banding on both his legs and club feet.

After receiving Ponseti treatment every week from the tender age of 1 week to 10 months, Liam showed no improvement. Ponseti treatment is a manipulative method that corrects congenital clubfoot without invasive surgery.

Jansen said the doctors at the state hospital confirmed they could no longer continue with the Ponseti treatment, as his feet are too severe and the amniotic banding caused a restriction of blood flow to his club feet causing terrible pain.

“It is very hard for both Liam’s father and myself to see him in so much pain; it is heart breaking. He is such a sweet little boy and always full of smiles. He tries so hard to do what the other kids are doing and I think that is what really upsets us. Liam is such a brave little boy and is so determined to try to fit in. All he wants to do is stand and walk but he can’t,” Jansen said.

She said at this point they have run out of all resources and contacted every medical cover possible to try to get Liam covered but have been told that this is a pre- existing condition that could not be covered.

Last year, Jansen organized a fundraising family fun day event that was held at Cape Recife High School in order to raise funds.

The live auction, fuelled by 42 sponsors, contains items such as clothing, toys, gift sets, hampers and sterling silver necklaces among others and is up on Liam’s fundraising facebook page at https://m.facebook.com/liamjansenfundraiser/

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