Organisation launched

2019-03-26 06:00
Parents with their children living with Down Syndrome at the launch of the T21 Support Cape on World Down Syndrome Day.

Parents with their children living with Down Syndrome at the launch of the T21 Support Cape on World Down Syndrome Day.

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With 21 March being World Down Syndrome Day, parents with children who live with Down Syndrome in the Cape launched an organisation, T21 Support Cape, which will provide support for them.

The organisation was launched at Green Point Park on Thursday 21 March.

The T21 Support Cape is an organisation that will act as a support structure for parents who have children living with Down Syndrome.

Co-founder of the organisation Stephanie van Der Vindt said there was little education on Down Syndrome and new parents are often left confused at how to raise their child.

“Down Syndrome is not an illness, it is just a disorder that is caused by an abnormality in genetic material, so new parents do not understand this and there is not much information on this. This organisation aims to connect, support and educate,” she said.

Van der Vindt has a 13-year-old son who was diagnosed with Down Syndrome at birth and she said there had never been a problem with his health due to his condition.

Like most parents, she did not know how to best raise her child, but the support she got from her family made it easier.

“I thought there was something wrong with Cassidy and I did not know how to raise him, luckily my family was there to offer support so that made the road easier.”

She wished more light can be shone on Down Syndrome.

Melissa Collison gave birth to a child with Down Syndrome two months ago. She said that, like most parents, she and her husband thought they were responsible for the child’s condition.

“Only after doing research did we realise that this is a common and we should not worry. We also spoke to people who knew about Down Syndrome and they explained to us what to expect.”

Collison said that the only problem she had with her son was his difficulty latching to her breast while feeding.

“But the doctor explained that it was a norm and not to worry, it only happened for a week.”

Van der Vindt said they plan to register the organisation so that it can be formally recognised, but there is still a lot that needs to be done like drawing up a constitution and elect a board.V For more information call Stephanie van der Vindt on 062 094 8074

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