ARTICLES RELATING TO RARE DISEASES

WATCH: Friends throw surprise Matric farewell for Krugersdorp teen battling rare disease

2019-10-31 13:10

Nadia’s long dreamt of dressing up for an occasion like a matric farewell.

WATCH: This giggling baby’s chuckles were caused by a rare brain tumour

2018-11-28 14:56

Gemma and Ed Young thought their son was just a very happy baby, but doctors later found Jack’s outbursts were triggered by a hypothalamic hamartoma – a benign brain tumour causing “laughing seizures”.

WATCH: Boy with rare condition starts first day of primary school

2018-09-11 17:10

Xander Pickering has a rare condition, which, for a very long time, meant he was unable to attend school. But he'll be attending "big school" this year for the first time, and he couldn't be more excited.

"Our little trooper": Katherine, the toddler whose skin broke out in blistering rashes

2018-07-17 11:16

When Katherine was born her body was covered in rash-like pustules that would blister and scab her fragile little body. Parent24 spoke to her dad, Richard, who told us all about her journey and how, eventually, she was diagnosed with the rare disease, incontinentia pigmenti.

Toddler can’t play in the sunlight due to rare eye condition

2018-05-25 17:14

A tot born with a rare eye condition who experiences pain in the sunlight has been dubbed “our little vampire girl” by her doting parents.

Seven-year-old dubbed superhero after undergoing five organ transplants in one operation

2018-04-25 17:28

A seven-year-old boy has become the first child in 20 years to undergo a remarkable operation – five organs transplanted in one go.

Meet Aaron, the 3-year-old Cape town boy who can’t eat

2018-03-22 14:54

Aaron was diagnosed with Interleukin-12 Receptor Defect, a rare and incurable disease that affects his immune system. He is the only child, of the few known cases worldwide, who can't consume food – at all.

‘I feel responsible for giving my daughter a rare disease’

2018-02-28 13:48

On International Rare Diseases Day, Mrs South Africa 2018 speaks about the importance of researching your genealogy and opens up about her family's struggles.

‘He grabs life by the scruff of the neck and enjoys it to the max’ – Mom of boy (8) with rare Costello syndrome

2017-12-21 14:42

is adorable video in a police car that went viral in October.

Mother shows strangers her ill daughter is not ‘contagious’ by showering her with love

2017-08-18 15:44

Doctors believe she is one of the youngest patients to have such a severe case.

 

Roodepoort parents at their wits’ end over 4-year-old son’s mysterious condition

2019-10-03 13:26

The family has travelled all over the country to various specialists in search of answers but without much success.

Hope for 8-year-old Ukrainian girl with progeria

2018-11-09 08:32

A young Ukrainian girl with a rare genetic disorder is set to travel to America for a ground-breaking treatment.

10-year-old with a genetic disorder makes viral waves with her incredible talent

2018-07-27 12:47

Despite the physical challenges of living with Muscular Dystrophy, the remarkable Ekaterina Borodulkina creates striking art and it's nothing short of inspiring.

WATCH: This girl has uncombable hair syndrome (it’s a thing)

2018-07-11 13:57

Meet the girl with uncombable hair

Mom on her son's fight with a rare neurological condition: "A disease that makes you think you are losing your mind"

2018-05-10 11:38

At the age of 10, Jed Kagan from Cape Town started experiencing unbearable pain that had doctors perplexed. Mom Shana explains how her son went from sufferer to hero.

WATCH: The story of Ayaan Ahmed, Cape Town's very own 'Bubble Boy'

2018-04-18 10:32

Ayaan Ahmed was diagnosed with SCID in 2016 and his parents were told their little one wouldn't make it past a year. Parent24 sat down with his mother, Shamaa Sheik, who shared his incredible story.

Understanding birth defects

2018-03-01 10:41

Most babies are born perfectly healthy, but for a small percentage, things go wrong. Many congenital disorders, or defects that happen in the womb, have no known cause. Here’s what you need to know about the five most common ones

Boy (11) must undergo surgery every three months to find the cause of rare disease

2018-01-12 16:08

An 11-year-old boy suffering from a rare and incurable disease has to have four operations a year.

A rare disease leaves toddler tumbling to the floor up to 100 times a day

2017-08-21 15:27

"We started to notice that she couldn't walk in a straight line anymore"

A mom's story: "Living with my son's Prader-Willi Syndrome"

2017-05-08 09:30

One in 15 000 babies around the world are born with PWS. Janet Legemaate shares their inspiring story.

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