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Question

29 Apr 2004

Dystonia
My father, sister and I all have paroxymal kinesiogenic dystonia. The neurologist that treated us put us on Sinemet to help alleviate the symptoms. My sister and I did a search on Sinemet on the internet and read that it must NOT be given to women of child bearing age. My sister is 25 and I am 23. This really worries us because even though neither of us want children right now, we dont know if we will in the future and dont want this option taken away from us. On the other hand though, I rely on this medication because without it, my symptoms are quite bad.

Could you please tell me what the dangers of Sinemet are to me and my sister and if it is bad, what are the alternatives.

Thank you very much for your help.
Answer 400 views
Expert
Geneticist
geneticist

01 Jan 0001

Dear Kelly

I am sorry to learn that your father's sister and yourself have paroxysmal kinesiogenic dystonia (PKD).

Many medicines carry a risk of damage to the unborn child during pregnancy. I do not have any specific data on Sinemet, but information will certainly be available through the pharmaceutical company which manufactures Sinemet. You could contact them directly, or through your GP or neurologist.

As some forms of PKD have a genetic basis, I suggest that you should arrange for a consultation in a Medical Genetics Department. They will be able to assess the risks of recurrence in your offspring and also provide guidance concerning Sinemet.

Regards, Maritha
The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical examination, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.
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