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13 Dec 2004

Wells syndrome and Cyclosporine
Hi Dr,

I have been diagnosed with Wells syndrome, an extremely rare skin condition. After treatment with Prednisone (corticosteroids) failed, I started with Cyclosporine (Sandimmune Neoral) 100mg per day therapy. I started with this on Saturday (two days ago).

My question is: in all the research I've done on the Internet and also on the pamphlet that comes with this medication it says you need to split up the daily dose into two different doses per day. I was given the 100mg capsules to take it once a day.
Isn't this the wrong way to take the medication? And doesn't this affect how well it will work? I am spending thousands on this medication and I'm also desperate for it to work and want to make sure that the way I'm taking it is correct.

Also, do you know of other cases of Wells Syndrome that has been reported in SA? I understand there's only just over 80 cases in the world.

Thank you so much.
Answer 432 views
Expert
CyberDoc
CyberDoc

01 Jan 0001

Wells, to tell you the truth, I don’t know what Wells syndrome is. I might know it by a different name, but if there are really just 80 people in the world I doubt that there is more than one in SA.
As far as I know Sandimmune® needs to be taken twice a day for it to work optimally. Your doctor probably prescribed it twice daily, but the pharmacist made a mistake. The best would be to phone your doctor and ask him. Good luck.
PS. If you have any info on Wells syndrome, please send it to me at CyberDoc@mweb.co.za.
The information provided does not constitute a diagnosis of your condition. You should consult a medical practitioner or other appropriate health care professional for a physical examination, diagnosis and formal advice. Health24 and the expert accept no responsibility or liability for any damage or personal harm you may suffer resulting from making use of this content.
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