Gluten-free craze: But what about people who really can't have gluten?


The gluten-free diet craze is both reassuring and upsetting to people with coeliac disease who are allergic to the nutrient, a small study suggests.

People with coeliac disease say they're happy to have more food choices at shops and restaurants. But some with coeliac sense a growing stigma as other people voluntarily go gluten-free. And many patients fear people see them as "high-maintenance" and misunderstand the severity of their disease.

"On the one hand, you have a lot more options available for patients that taste better and are becoming more affordable. But at the same time, you have this gluten-free craze that's recognised as kind of a fad diet, so coeliac disease goes misunderstood in social situations, leaving patients more anxious," said study author James King.

He's a graduate student in the department of community health services at the University of Calgary, in Canada.

Coeliac is an inherited autoimmune disorder affecting about 1%of people in North America.

When those who have it consume gluten - a protein found in wheat, rye and barley - their immune system reacts by attacking the small intestine.

And, according to the Coeliac Disease Foundation, the disorder has been tied to other serious health problems, including cancer and type 1 diabetes. Avoiding gluten is the only current treatment.

Trendy choice

Meanwhile, a gluten-free diet has become a trendy choice for many without coeliac disease, either to shed pounds or for other purported health benefits. Some embrace it due to a sensitivity to gluten that creates unpleasant, but not damaging, gastrointestinal symptoms.

For the study, King's team interviewed 17 coeliac disease patients about their experiences in an evolving gluten-free world.

"Just having a prescription of a gluten-free diet for people with coeliac disease… doesn't acknowledge some of the challenges patients face after treatment," King said.

His team found, for example, that participants were fearful of inadvertently consuming gluten when they eat out. That's because restaurants may say they are "gluten-free friendly," but not do enough to avoid cross-contaminating foods. After all, King said, many of their customers simply prefer gluten-free, but they don't require it.

"Some participants discussed how they sometimes feel high-maintenance or difficult by asking how food is prepared," he said. "They felt a lot of restaurants nowadays have embraced this business opportunity to have gluten-free options… but are unsure how strict they're going to be to make it gluten-free."

Marilyn Geller is chief executive officer of the Coeliac Disease Foundation in California and wasn't involved in the new research. She said the findings reinforce what coeliac patients typically report.

"Overwhelmingly, they feel socially stigmatised because of the disease," she said. "With the push to a gluten-free diet, the disease is no longer taken seriously. If you go into a restaurant now and the server hears you're gluten-free… they often don't consider it a medical condition."

Geller said a drug treatment for coeliac disease must be developed to impress its seriousness upon the public. Better training for restaurant workers also might help, she said, but not as much as a medication.

"The real drawback is because there's not yet a medication - and in America, we equate medications with serious conditions - people are not going to take it seriously," she said.

King suggested that health care providers point coeliac patients to registered dieticians, local support groups and other resources that might help.

The study was published online recently in the Journal of Human Nutrition and Dietetics.

Image credit: iStock

We live in a world where facts and fiction get blurred
In times of uncertainty you need journalism you can trust. For 14 free days, you can have access to a world of in-depth analyses, investigative journalism, top opinions and a range of features. Journalism strengthens democracy. Invest in the future today. Thereafter you will be billed R75 per month. You can cancel anytime and if you cancel within 14 days you won't be billed. 
Subscribe to News24
Voting Booth
Zama zama crackdown: What are your thoughts on West Village residents taking the law into their own hands?
Please select an option Oops! Something went wrong, please try again later.
Authorities should bring in the army already
10% - 2537 votes
Illegal miners can't be scapegoated for all crime
52% - 12653 votes
What else did we expect without no proper policing
34% - 8318 votes
Vigilante groups are also part of the problem
3% - 823 votes
Rand - Dollar
Rand - Pound
Rand - Euro
Rand - Aus dollar
Rand - Yen
Brent Crude
Top 40
All Share
Resource 10
Industrial 25
Financial 15
All JSE data delayed by at least 15 minutes Iress logo
Editorial feedback and complaints

Contact the public editor with feedback for our journalists, complaints, queries or suggestions about articles on News24.