WATCH | 'One dose costs millions': Photographer plans epic climb to fund baby's lifesaving treatment

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Photographer Joe Giddens has pledged to climb England's highest peak, Scafell Pike, nine times in 24 hours to raise money to help treat Marley Powell, a baby with the life-threatening condition Spinal Muscular Atrophy (SMA).

Of babies born with SMA, 95% do not live past 18 months without effective treatment, which is very costly. 

Marley's parents hope his life can be saved by Zolgensma, which has been dubbed the world's most expensive drug. 

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"One dose that goes through an IV, takes an hour to pump through the system... that dose costs £1.6 million and it's heartbreaking to think that we've got to get that just to give Marley the life expectancy that he deserves," said the baby's mom, Rosie-Mae Walton. 

After hearing about Marley via a fundraising appeal his parents launched online, photographer Joe Giddens decided to help raise funds for the family with his extreme climb. 

"We're speechless, it's amazing. We're just so grateful and thankful to Joe". 

Watch the video above for more.


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