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DIGITORIAL
On a cancer journey medical experts can give you direction but it’s up to you to ask for clarification to get to your destination of recovery. Medical terminology can be overwhelming but don’t be afraid to keep asking – the only stupid question is the one you didn’t ask. Dr Ernst Marais, Operations Executive of the Independent Clinical Oncology Network (ICON), says there are eight steps to follow to make sure you get the best cancer treatment.1 Be collaborative
Doctors used to be authority figures who told us what to do based on the best information they had. But those attitudes are changing and doctors are more open to patients collaborating with their medical teams. There’s also so much information available on the internet and from support groups.2 Be informed
If you’re well-informed you’ll have a more fruitful discussion with your medical team. But don’t rely on the internet alone. Ask your doctor for good reference material, speak to other cancer patients and consult their support groups and credible experts.3 Be patient
A cancer diagnosis is definitely scary but you shouldn’t feel frightened into making a treatment decision immediately. Always be guided by your doctor, but even the most aggressive cancers will usually allow you a few weeks to think things through rationally and to get input from trusted sources.4 Be specific
If practically possible, get in touch with the doctors who know most about your specific type of cancer. There’s been so much new information in oncology in recent years that it makes sense to seek out the specialists in a particular field.5 Be open
No doctor worth their salt should be offended if you want a second opinion. You shouldn’t have to worry about hurting your doctor’s feelings, or staying quiet for fear of ruining a good relationship. It’s your life that’s on the line.6 Be discerning
Whoever you choose to be on your medical team is potentially with you for the rest of your life because follow-ups are required even if you’re in remission. So make sure you connect with them and communicate easily, as they become your extended family.- Play an active role in your treatment and recovery.
7 Be reminded
Take a list of questions to every doctor’s consultation to help you remember what you want to ask. Or if you have a smart device, download a voice recorder app to capture every session. Then you won’t have to try to remember everything, you can refer back to the session and ask more questions at the next consultation.8 Be clear
At the end of every consultation, ask your doctor if you can sum up in your own words what you’ve heard to make sure you understand what’s happening.
You can call the Independent Clinical Oncology Network (ICON) on 021-944-3750, email icon@cancernet.co.za or go to www.iconsa.co.za.
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Disclaimer
The views and experiences expressed by the individuals featured in these personal accounts are in no way intended as an endorsement of any product or service – commercial, retail or otherwise.
